The community can develop an integrated approach that considers ethical, technical, and policy implications as countries develop and implement health information systems. Understanding and addressing the challenges within health domains in a country and supporting all longitudinal data use cases require engagement from multiple points of expertise represented in the community and addressed by the following pillars:
CLINICAL CARE: Ensure that any recommendations for addressing continuity of treatment issues are aligned with other efforts to improve the quality of care along the clinical cascade.
SYSTEMS: Ensure that data collected and managed in existing systems, paper or digital, are described and implemented using standardized tools and data models and are appropriately staged based on a country’s current capability.
POLICY: Develop and identify the necessary policy, guidelines, and legal frameworks for critical issues involving patient confidentiality, data security, data sharing agreements, and related legal and legislative concerns.
DATA REUSE AND ANALYSIS: Ensure that the data systems support the ready reuse of data for a variety of purposes, such as monitoring and evaluation, improving the public health response, case surveillance, syndromic surveillance, and quality improvement initiatives.